Skip to main content

I'm Home! We're Both Home!

01.18.2023

Day 13

It feels sooo good!  My numbers popped up today just as they said they would.  Yesterday 400, today 1100.  Still way off from the norm of 140,000, but it's a start and an indicator that the stem cells have engrafted.  

There is nothing like the creaks and groans of our home.  Familiar sounds, familiar smells, familiar surroundings pull me back into its cozy bosom.  If you've ever been to our house, you know we have decorated in some pretty bold colors, and I was so happy to see the mango, asparagus and tomato soup colored walls.  It felt really good to get back into the kitchen to putter and nest - there is a place for everything and everything has a place, instead of having adult diapers sitting next to the breakfast cereal in the window sill for all to see.

Thanks to everyone for being a part of our journey these past few weeks.  We still have a few more weeks of isolation until I have a stronger immune system.  

Kristin here - I am especially grateful to all the folks at Langsford, my work family, for all the wonderful food.  It was much more important than I realized it would be.  You kept me nourished physically and emotionally.  It's nice to know you still care even though I don't work there anymore :)

We'll continue updating the post from time to time.  This is just the end of the first chapter.

 

Comments

  1. ClaudiaJanuary 19, 2023 at 7:54 AM

    Absolutely love seeing Leila’s beautiful smiling face at home!! You are both incredibly strong and it is an honor to watch how you love and support each other through this. So glad chapter one is coming to a close! ❤️

    ReplyDelete

Post a Comment

Hey, this is the Comment Form Message, whatever that means.

Popular posts from this blog

Super Duper Stem Cell Producer

Super Duper Stem Cell Producer         12-28-22 Apheresis Day 2       2.46 + 6.2 = 8.66 mil Fantabulous! Today got off to a fabulous start!!  Early morning labs looked good. Their focus is on the number of stem cells circulating in Leila's blood stream.  That's what leads to a good collection.  Last night they gave Leila a different growth factor shot to push the stem cells out of her bone marrow and send them running through her blood stream.  Kinda like squeezing a sponge I suppose.   And wowee!!  Those stem cells ran rampant today. Could it be from the ice cream? The minimum circulation goal for today was 20, just like yesterday. Yesterday morning’s calculation was 29. Today it’s 83!!!!!  Yippee!!  She got hooked up to the machine and everything flowed smoothly.  Michelle, the nurse who's been sitting with us every moment the past two days, was encouraging about it being a good day...
6 comments
Read more

Round and Round We Go

Day 5           January 10, 2023 For days now we've been walking in circles.  I feel a bit like a zoo animal.  You know how they walk the same path over and over and over, wearing away the grass, breaking the tree twigs, leaving their mark on the earth.  We are certainly doing that here walking around and around the nurses station.  Since Leila can't leave this tiny unit there is nowhere else for her to  get the needed exercise to maintain her muscle strength. Although at this point I don't think she wants to wander too far from her bed.  The fatigue and weakness is increasing exponentially.  I did get outside for a walk midday to get some fresh air - it was a gorgeous day!   Hard to believe its January out there, until I see all the bare, brown trees and gray grass.    It's been kinda boring the past few days. Although, I love hanging out with Leila, no matter the circumstances.  Nothing new to re...
6 comments
Read more

Intention for chemo day 01.03.2023

​ Day -2 Come out, come out, wherever you are.  May the cancer cells in Leila's blood and bone marrow welcome the chemo and receive an invitation to exit this human.
5 comments
Read more