Skip to main content

0.0 Leila done lost her spunk


Day 8 

01.13.2023

Friday the 13th


WBC 0.0

Neutrophils, eosinophils, basophils, lymphocytes, monocytes, macrophages - all nil, nada, zilch, zip, zero

RBC 3.4

Platelets 3.0       

They gave her a bag of platelets today because her nose started bleeding.  Nothing there to help it clot.


What does it look like when someone has minimal blood?


This was yesterday:



This was this morning:




In actuality she's looked like this the majority of the past 3 days:

    



When asked how she was feeling, Leila told the nurse, "I feel like I am on my period, with the flu, and I ate bad sushi last night, after running a marathon in high heels."  Nothing like some good imagery to help us understand.   

So, maybe she hasn't totally lost her spunk - it peeks out from time to time throughout the day.  They switched her to phenergan for the nausea today and she started having wild dreams, talking in her sleep and having mild hallucinations.  But it kept the nausea at bay.  Guess you have to choose your poison sometimes.  

It's so hard so see Leila lifeless.  That's just not her.  She's probably been awake only a few hours each day since Wednesday.  Looking forward to those numbers starting to climb back up so the Leila we all know and love starts to feel more alive.  Right now she feels pretty punk, but the doctor said that should shift this weekend.  The good news is her mood is good, her spirits are good and her sense of humor is intact - when she is awake.  

I got a real good description today from the APRN overseeing her care.  He said the stem cells she received last week went into the bone marrow and planted themselves, much like you'd plant seeds in the garden.  The growth hormone shots she's been getting in her belly since day 3 are like the fertilizer, nurturing the seeds.  Now that the dead cells are finding their way out of her system, the new cells will start to flourish, push out of the bone marrow, and into her blood stream.  The rate of production will determine how soon she can leave the hospital.  We'll be watching and waiting, sending all our intentions for lots and lots of heathy productive stem cells.  Here's hoping they procreate like rabbits and mice. 

Neutrophils, eosinophils, basophils, lymphocytes, monocytes, macrophages, platelets and erythrocytes - multiply!!!

Nows the time we expect her hair to start falling out, as the new cells come in and push out the old dead ones.  Her skin is tingly, which is a sign that is happening.  Oh my.


Comments

  1. Hey my friends, tough times but not unexpected. I really appreciate your honesty and you imagery in what you’re going through. I am sending good mojo and vibes that her healthy cells grab hold and procreate in abundance this weekend. Hugs, Cathy

    ReplyDelete
  2. Continuing to send love. You are both strong. So glad she still has her sense of humor 😊

    ReplyDelete
  3. Sending up loving, healing thoughts.❤️ Hugs to you both!

    ReplyDelete
  4. Sending you both love, hugs a lots of prayer’s.

    ReplyDelete
  5. Sending you lots of love, big, bigs hugs and all wishing all the strength to make the healthy cells your body needs. Love you lots, sweet P 😘❤️

    ReplyDelete

Post a Comment

Hey, this is the Comment Form Message, whatever that means.

Popular posts from this blog

Super Duper Stem Cell Producer

Super Duper Stem Cell Producer         12-28-22 Apheresis Day 2       2.46 + 6.2 = 8.66 mil Fantabulous! Today got off to a fabulous start!!  Early morning labs looked good. Their focus is on the number of stem cells circulating in Leila's blood stream.  That's what leads to a good collection.  Last night they gave Leila a different growth factor shot to push the stem cells out of her bone marrow and send them running through her blood stream.  Kinda like squeezing a sponge I suppose.   And wowee!!  Those stem cells ran rampant today. Could it be from the ice cream? The minimum circulation goal for today was 20, just like yesterday. Yesterday morning’s calculation was 29. Today it’s 83!!!!!  Yippee!!  She got hooked up to the machine and everything flowed smoothly.  Michelle, the nurse who's been sitting with us every moment the past two days, was encouraging about it being a good day...

Round and Round We Go

Day 5           January 10, 2023 For days now we've been walking in circles.  I feel a bit like a zoo animal.  You know how they walk the same path over and over and over, wearing away the grass, breaking the tree twigs, leaving their mark on the earth.  We are certainly doing that here walking around and around the nurses station.  Since Leila can't leave this tiny unit there is nowhere else for her to  get the needed exercise to maintain her muscle strength. Although at this point I don't think she wants to wander too far from her bed.  The fatigue and weakness is increasing exponentially.  I did get outside for a walk midday to get some fresh air - it was a gorgeous day!   Hard to believe its January out there, until I see all the bare, brown trees and gray grass.    It's been kinda boring the past few days. Although, I love hanging out with Leila, no matter the circumstances.  Nothing new to re...

Intention for chemo day 01.03.2023

​ Day -2 Come out, come out, wherever you are.  May the cancer cells in Leila's blood and bone marrow welcome the chemo and receive an invitation to exit this human.